Thursday, November 06, 2008

banging my head against the wall

I went to the Rheumatologist this afternoon to have some blood work done and discuss my current meds. I'm a mess right now, and based on experience I don't believe I'm going to get better on the Remicade/methotrexate cocktail. I want off the MTX, and I want to explore other options, like Humira or Cimzia. When I brought up the possibility, she told me that I hadn't been on the MTX long enough at the current dosage and that she didn't want to raise it yet, but that she'd raise the dose before she'd consider taking me off it. And then she offered me prednisone. Prednisone! The evil step-mother of autoimmune treatments. She wants to put me on 2.5-5 mg of the stuff indefinitely. As in forever. And oh, by the way, I should also go on another IV drug to stop the pred from melting my bones. (Remicade, for those not in the know, is also an IV drug. Typical dosing for Crohn's is one infusion every 8 weeks. I'm currently on one infusion every 6 weeks, and she's talking about upping my dosage on that, too.) Side effects of pred (more common with high doses, but also possible with long term use) include weight gain, cataracts, diabetes, osteoporosis, Cushing's disease, and insomnia. I still haven't managed to clear the thrush from the course I was given in the hospital a year and a half ago, either. And she wants me to go back on that crap? She also wants to consider putting me on a second chemo drug. (MTX is a chemo drug.) She wasn't clear on whether that's in addition to what I'm already on or to replace the Remicade. I'm pretty sure it's in addition. More chemo. That's really going to help my fatigue. I've got to get a new doctor.


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